Text Box: Text Box: Precious KatherineText Box: Links This is a great site for anyone that wants to help a grieving parent. Many people don’t know what to say or do when a friend or family member goes through the death of a child. This site outlines specific things that will truly benefit a grieving family. Text Box: http://www.babysteps.com/rrmainframe.html http://livingwithtrisomy13.org/index.htm This site focuses on bringing the families of beauitiful Trisomy 13 children together. Sharing their stories of living and growing in love in the challenges of raising a Trisomy 13 child. http://www.trisomyonline.org/families.htm In November 1997 a group of people interested in Trisomy 18, Trisomy 13 and other related chromosomal disorders got together and started an e-mail based support group. Together they share their love, hopes, fears, grief and the day to day caring for a child affected by a rare chromosomal disorder. http://ourlittlegemma.com This site was created in loving memory of Gemma Therese Holihen, who was diagnosed at 18 weeks gestation with Trisomy 13. She lived for 52 minutes in her family’s arms before going to Heaven. This site has a lot of practical information in carrying to term with a baby who has been given an adverse diagnosis. http://www.benotafraid.net/ Benotafraid.net is an online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within this site are presented as a resource for those who may have been asked to choose between terminating a pregnancy or continuing on despite the diagnosis. http://adventuretech.us/sidney/ Carrying To Term with A Negative Prenatal Diagnosis. This site is written by a mom who carried her baby to term with thanatophoric dysplasia type 1 (a fatal form of dwarfism). Resources, support and personal stories. http://www.erichad.com/wwl/ Waiting with Love… For parents who choose to continue a pregnancy knowing their unborn baby will die before or shortly after birth and for families who learn their newborn will die. http://www.aplacetoremember.com/aptrfront.html Uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby. http://thehealingpowerofprayer.com/index.htm Thehealingpowerofprayer.com is a place for those of all faiths to share prayer requests, a place of inspirational faith-building stories and links, and pictures and updates of Natalia, a miracle child who was born in Aug of 2005 with Full Trisomy 13. http://www.geocities.com/wilsfordmindy/ Written by her mom who carried her daughter to term with trisomy 18. This site is an extensive "how to" on t-18 (and related disorders) and carrying to term. http://graceannenugent.netfirms.com/ The inspirational story of Grace Anne Nugent who was diagnosed in utero with Full Trisomy 18. This site is full of many resources for carrying to term along a copy of a birth plan. http://www.geocities.com/tabris02/tips.html After a devastating prenatal diagnosis, it's too often assumed that a mother will automatically terminate. If you ahve determined to carry your unborn baby to term despite his or her fatal condition, this website was designed for you. It is full of many great tips for carrying to term. Midwifehelp@aol.com E-Mail Support: A friend of mine, Bess Raulerson, a Nurse Midwife is very knowledgeable with both Trisomy 13 and 18, has generously offered to answer questions or help in anyway she can to those faced with these and similar diagnoses. Her daughter Emma Grace’s story is below. http://www.emmagrace.netfirms.com/